I know the disease has been in my family far longer than I can trace back. For my tracing purposes I can go as far back as my great-grandmother on my paternal side. She had HD and had 4 children, 2 boys and 2 girls. One of the girls had HD (late onset in her eighties) and one of the boys (my grandfather). My other great-aunt lived a normal life and my great-uncle died young of a heart attack. My grandfather developed the disease and died when I was about 17 years old. I wasn’t around him much growing up. My dad was never very close to my Grandfather due to a violent upbringing and alcohol abuse. Looking back I think my dad always wondered how much of it was truly my grandfather and how much of it was HD. I did go to my grandfather’s funeral and I remember that being very hard for my dad. My grandmother and grandfather had 4 living children. Out of those four (3 boys and 1 girl) only one was lucky enough to escape the disease. My dad died this past July (7/14/11) and my Aunt is currently in Hospice and not doing well. My affected uncle is currently incarcerated. I was never close with him but I have to wonder if some of his bad choice weren’t due to HD. My uncle who was lucky enough to escape this horrible disease lives a normal life. Out of my dad and his siblings there are a few of us “at risk” kiddos. I have cousins who are all living the same life I am living. We talk when we can and hope we all escape the evil future we are threatened with. Then there is my sister (my lifeline in this world). We are in this boat together. Paddling, paddling, paddling….
This is just my families story. I didn’t want to make anyone dizzy reading this and NO there is not a test 😉 All HD family stories are different and this is just mine.