Hello to the internet world! I am so happy you found me! Let me introduce myself. My name is Kim. I am a 39 (and holding dearly) year-old married woman. I have four beautiful kids and was blessed with my first granddaughter about 3 weeks ago. I am living a life at-risk for Huntington’s Disease. I am sure some of you are wondering what in the world this Huntington’s Disease is and some of you know EXACTLY the demon I am talking about. Life is a daily struggle to live at-risk for this disease. Many people judge you for not being tested and others judge you for being tested. I have decided to live my life without testing at this time. I do struggle each day with wondering if every little thing is an “early symptom.” For example, I will be laying in bed at night and get a knee jerk, or my body will jerk, or during the day my memory will slip. Is this Huntington’s or is this a normal life? Everyday is like this. Some days are better than others. It feels like being between a rock and a hard place. By not testing for the gene I live a life with an unforeseen and hard to plan future. By testing I could get the fantastic result of “negative” or I find out my life will also be taken short by this evil disease. By finding out I am positive it also now puts my children living the “at-risk” life I am now living. I guess I’m not ready to put them where I am right now. It can be a very lonely and scary life that so few understand. On the other hand I realize I need to see each day as a blessing and try and live life to maximum enjoyment. Some days are much easier than others. This is a personal journal I guess you would say. A personal journal of my ups, downs, changes, etc. I will forewarn you if you are looking for a grammar specialist you have stumbled upon the wrong blog. I have never been good at knowing where the comma’s go or wondering if I should’ve started a new paragraph. If you want to read about the struggles of living with HD in your life you are at the right place. I will talk about my husband, my children and my new precious granddaughter. I will talk a lot about my parents and my amazing sister. I will talk about my extended family. I will talk about trying to lose weight and my passion for simplifying my life so that I can spend more time with my family. I will write about my hobbies and my friends. I have a wonderful life and I consider myself to be very blessed. I also live a life with a huge question mark. Every decision I make in life always seems to come back to Do I have Huntington’s Disease?
I hope you enjoy reading my blog and look forward to getting to know new people. If you are new to Huntington’s Disease I will be posting more soon about the disease itself. I just wanted this first post to be a look inside my world 🙂