My first post into the blogging world…

Hello to the internet world!  I am so happy you found me!  Let me introduce myself.  My name is Kim.  I am a 39 (and holding dearly) year-old married woman.  I have four beautiful kids and was blessed with my first granddaughter about 3 weeks ago.  I am living a life at-risk for Huntington’s Disease.  I am sure some of you are wondering what in the world this Huntington’s Disease is and some of you know EXACTLY the demon I am talking about.  Life is a daily struggle to live at-risk for this disease.  Many people judge you for not being tested and others judge you for being tested.  I have decided to live my life without testing at this time.  I do struggle each day with wondering if every little thing is an “early symptom.”  For example, I will be laying in bed at night and get a knee jerk, or my body will jerk, or during the day my memory will slip.  Is this Huntington’s or is this a normal life?  Everyday is like this.  Some days are better than others.  It feels like being between a rock and a hard place.  By not testing for the gene I live a life with an unforeseen and hard to plan future.  By testing I could get the fantastic result of “negative” or I find out my life will also be taken short by this evil disease.  By finding out I am positive it also now puts my children living the “at-risk” life I am now living.  I guess I’m not ready to put them where I am right now.  It can be a very lonely and scary life that so few understand.  On the other hand I realize I need to see each day as a blessing and try and live life to maximum enjoyment.  Some days are much easier than others.  This is a personal journal I guess you would say.  A personal journal of my ups, downs, changes, etc.  I will forewarn you if you are looking for a grammar specialist you have stumbled upon the wrong blog.  I have never been good at knowing where the comma’s go or wondering if I should’ve started a new paragraph.  If you want to read about the struggles of living with HD in your life you are at the right place.  I will talk about my husband, my children and my new precious granddaughter.  I will talk a lot about my parents and my amazing sister.  I will talk about my extended family.  I will talk about trying to lose weight and my passion for simplifying my life so that I can spend more time with my family.  I will write about my hobbies and my friends.  I have a wonderful life and I consider myself to be very blessed.  I also live a life with a huge question mark.  Every decision I make in life always seems to come back to Do I have Huntington’s Disease?

I hope you enjoy reading my blog and look forward to getting to know new people.  If you are new to Huntington’s Disease I will be posting more soon about the disease itself.  I just wanted this first post to be a look inside my world 🙂

Kim